April is Parkinson’s Disease Awareness Month

Parkinson's Scrabble

Parkinson’s Scrabble

In  2010, the U.S. Senate designated April as Parkinson’s Awareness Month. Since then, Parkinson’s communities around the globe have boosted their year-round PD awareness campaigns every April. Considering approximately 6.3 million people worldwide have this affliction, public education is important. It promotes understanding, compassion, community, research, treatments, philanthropy  and hope. And for this, I am grateful. But as someone who has Parkinson’s disease and must cope with the myriad symptoms – every second of every minute of every day of every month – I would welcome a designated month, or even one designated day of escape from PD. And I’d call it a Parkinson’s Holiday.

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Update From Robyn Michele Levy’s Nose

rose cry Animation1I’ve been plucked! My very first noselash!  

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Update From Robyn Michele Levy’s Brain

This week is full of joy and sorrow:
My mother passed away 2 years ago this March 14th
My sister’s birthday is March 15th
My daughter’s birthday is March 19th
Maintain regular medication regime while riding emotional roller-coaster.
Do not adjust your scream.

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The Flying Pig Heads to Britain for The Edible Masterpieces Fundraiser

Flying pigs may not be kosher, but they sure are cute. And they love fundraisers! Especially when they feature art and food. This pig popped up in my dream and flew all the way to The Art Fund in Britain, just in time for the launch of  Edible Masterpieces. This brilliant bake-off challenges art fans to create “comestible homages to their favorite works of art”  to help raise money for museums and galleries. Check it out — Jackson Pollock never tasted so good!

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Five Fantastic Films About Love

olderman Animation1It’s been almost two months since Bergen’s open-heart surgery. I’m thrilled to report he is well on the road to recovery — thanks to family, friends, strangers, doctors, nurses, caregivers, and Netflix. Most nights we’ve cuddled up on the couch and watched films and documentaries. If you’re looking for powerful love stories, we highly recommend these 5 gems:  Monica and David   Beginners  Romantics Anonymous  The Sessions   Fill The Void

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Overheard at the Parkinson’s Scrabble Tournament: “I really need a vowel movement.”


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Happy 76th Birthday Dad!

Dad Animation2The official name on his birth certificate reads Gordon Levy. I call him Dad. Other people call him Gord, Go-Go, Buckwheat Zydeco, Gordoon, Gordy, Zaidy, Zee-Zee, Gordo, Daddy-o, Mr. Got-to-go, Mr. L, Mr. G, Uncle Gordon, husband of Lea, son of Charles and Annie, brother of Glenda (may they all R.I.P.). Mr. Levy. V.I.P. My Dad says, “each name’s a winner — just don’t call me Late-For-Dinner.”

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Health Tip #40

Listen to the crackling fire’s dying embers and flickering flames
“Sticks and stones, skin and bones, we are all the same.”

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Happy Open Heart New Year!

heart road Animation1Last week, my husband had open heart surgery. Last night he was discharged from hospital. Today, he held my hand and we set out on the road to recovery. For better, for worse, for richer, for poorer, in sickness, and in health…over-flowing with gratitude for everything everyone did to help us welcome this New Year — 2014 — together. Hallelujah!

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Somewhere In The Rainbow: Marg Meikle – CBC’s The Answer Lady & Parkinson’s Disease Warrior

February 15, 1956 — December 21, 2013

Marg is/was/always will be my hero
So brave, committed, inspiring, talented, loved
May she rest in peace

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