Category Archives: research

Parky the Raccoon Helps Travelers Attend World Parkinson Congress 2016

Parky made its debut in Montreal at the World Parkinson Congress 2013. Selling these stuffed toy raccoons was a “last minute” fundraising idea, leaving no time to create and advertise a Parky fundraising campaign. Much to everyone’s surprise and delight, Parky … Continue reading

Posted in Early Onset Parkinson’s Disease, Parkinson's disease, research, shopping, travel, Young Onset Parkinson’s Disease | Tagged , , , , , | 1 Comment

Robyn Michele Levy’s Brainwaves Join #FoxPDchat on Twitter — Friday April 17 at 12 pm ET

How is technology changing #Parkinsons research? Find out by joining @MichaelJFoxOrg for a scintillating #FoxPDchat on Twitter — Friday, April 17 at 12 pm ET.

Posted in Early Onset Parkinson’s Disease, health, Parkinson's disease, research, Young Onset Parkinson’s Disease | Tagged , , , , , | Leave a comment

Meet the World Parkinson Congress 2016 Ambassadors!

WPC 2016 Ambassadors play an important role: They all have Parkinson’s disease and have established themselves as dedicated and passionate leaders in PD communities close to home and around the world online; they’ve all attended at least one World Parkinson Congress; they … Continue reading

Posted in Early Onset Parkinson’s Disease, health, Parkinson's disease, research, travel, Young Onset Parkinson’s Disease | Tagged , , , , , , | Leave a comment

Robyn Michele Levy Joins World Parkinson Coalition’s Global Community of Bloggers!

I am so thrilled to be a blogging partner with World Parkinson Coalition —  a nonprofit organization dedicated to a worldwide dialogue to help expedite the discovery of a cure and best treatment practices for this devastating disease. I will be one of … Continue reading

Posted in Early Onset Parkinson’s Disease, health, Parkinson's disease, research, travel, Young Onset Parkinson’s Disease | Tagged , , , , , , , , | 2 Comments

The Art of Healing: 10 Inspiring People & Projects

Lately, I’ve been thinking about the word healing. Here are links to people & projects that inspire me: Rabbi Ronnie Cahana  Howard Shifke  Boundless Adventures Project Somos  Roots of Empathy  Mark O’Brien  Porridge for Parkinson’s  Stephen & Ondrea Levine  Out … Continue reading

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Parkinson’s Disease Awareness Month Presents “Brainstorm For a Cure”

It was a dark and brainstormy night for The Michael J. Fox Foundation for Parkinson’s Research, Fox Trial Finder, The World Parkinson Congresses, The Pacific Parkinsons Research Institute, National Parkinson Foundation, The Cure Parkinson’s Trust, Parkinson’s Humor, Davis Phinney Foundation, Parkinson’s Action Network, American Academy of … Continue reading

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The New Year’s Cat is out of the Bag!

What surprises will she bring? A cure for Parkinsons and Parkindaughters and Parkinmothers and Parkinfathers? A cure for cancers of the breasts, the lungs, the tongue, the brain, the test(icles), the liver, the bladder, the pancreas, all the orifices including … Continue reading

Posted in Art, breast cancer, health, humor, Parkinson's disease, research | Tagged , , , , , , , , , , , , , , , , , | 8 Comments

Vancouver’s Porridge For Parkinson’s Fundraiser Is On Sunday, November 18

Get out your spoons! Get out your wallets! The 12th Annual Porridge For Parkinson’s takes place Sunday, November 18th. If you can’t be there in person, you can donate on line.

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One of Those Days

Have you ever had “one of those days” when you feel moody and muddled and not at your best? Well, I’ve been having “many of those days” lately. My Neuropsychiatrist assures me things will improve — once he finds the … Continue reading

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Brave Bev Ribaudo Prepares for Deep Brain Stimulation

Last week, I heard it through the Tweet-vine, that my funny friend Bev Ribaudo (who also has early onset Parkinson’s disease) was getting DBS: Deep brain stimulation. I won’t go into all the gory details, mostly because just thinking about … Continue reading

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