Author Archives: Robyn Michele Levy

About Robyn Michele Levy

I am an artist, writer, radio broadcaster, performer, mother, breast cancer survivor. I also have Parkinson's disease. My memoir, Most of Me, is available at local and on-line bookstores.

Sunshine Strikes a Chord — A #Widow of Opportunity

Woke up alone in bed. Again. Shuffled to the kitchen. Greeted “good morning” by my   radiant piano. Tuned in to Bergen. He loved music and how it connects communities. The way Keys to the Streets does — a project that aims to transform … Continue reading

Posted in Art, breast cancer, death, Early Onset Parkinson’s Disease, Mental Health, Parkinson's disease, relationships, Young Onset Parkinson’s Disease | Tagged , , , , | 1 Comment

Hindsight, Findsight — A #Widow of Opportunity

Found my late husband’s driver’s licence from 1965. Bergen was 22. A young man destined to travel the world. Had we met back then — when I was just one year old — I could have been his carry-on luggage.

Posted in breast cancer, death, Early Onset Parkinson’s Disease, humor, Parkinson's disease, relationships, travel, Young Onset Parkinson’s Disease | Tagged , , , , | Leave a comment

Remembering Bergen Amren

April 21, 1943 – January 16, 2016 Bergen Amren passed away peacefully on January 16th. Born in Prince Rupert, he grew up in the bustling town of Bear Creek, Yukon, he was moved to Vancouver at the age of seven … Continue reading

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Somewhere In The Rainbow: My Husband, Bergen Amren

Bergen Amren April 21, 1943 – January  16, 2016 My love, my muse, my best friend R.I.P.

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Confession from an Artist with Parkinson’s Disease

It’s been – and still is – a long, hot summer. Miraculously, I’ve managed not to melt. More incredible, I worked up the courage to buy some real art supplies. Stuff I intentionally stopped using when diagnosed with Parkinson’s. Why? By avoiding … Continue reading

Posted in Art, Early Onset Parkinson’s Disease, health, Parkinson's disease, Young Onset Parkinson’s Disease | Tagged , , , , | 4 Comments

Guess How I Broke My Toe?

1. A stranger accidentally stepped on it while I was at Rain or Shine — my favourite ice cream store. 2. I got carried away while reading Toes In My Nose, a poem by Sheree Fitch. 3. My toe snagged on … Continue reading

Posted in Early Onset Parkinson’s Disease, Parkinson's disease, poetry, Young Onset Parkinson’s Disease | Tagged , , , , | 4 Comments

What’s It Like Having Parkinson’s? Try Bruce Ballard’s Simulation Exercises

Parkie Bruce Ballard — fellow WPC Blogger Partner — is shaking up the internet with his recent post: “What’s It Like Having Parkinson’s?.”  If you’ve ever wondered what PD feels like, try these simulation exercises and encourage your friends to join the thousands … Continue reading

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World Parkinson Congress 2016 Launches “Portland Countdown” #WPCPodcast Today — Tuesday June 2, 2015

I’m a firm believer that knowledge is power. That’s why I’m so excited to tell you about Portland Countdown.  This new series of free educational podcasts — hosted by two highly experienced journalists (who are also living with Parkinson’s) — … Continue reading

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Parky the Raccoon Helps Travelers Attend World Parkinson Congress 2016

Parky made its debut in Montreal at the World Parkinson Congress 2013. Selling these stuffed toy raccoons was a “last minute” fundraising idea, leaving no time to create and advertise a Parky fundraising campaign. Much to everyone’s surprise and delight, Parky … Continue reading

Posted in Early Onset Parkinson’s Disease, Parkinson's disease, research, shopping, travel, Young Onset Parkinson’s Disease | Tagged , , , , , | 1 Comment

Today’s Big Pharma Forecast For Robyn Michele Levy’s Brain

Today is a brave new day in your neurodegenerative life!  Your brain chemistry — probably your dopamine levels — are out of whack and causing havoc: On/Off symptoms; body trembling; sleep deprivation. Begin neurologist’s new (and improved?) medication regime. Keep track of side-effects. Resist urge … Continue reading

Posted in Early Onset Parkinson’s Disease, humor, Mental Health, Parkinson's disease, Young Onset Parkinson’s Disease | Tagged , , , , , , | 2 Comments