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Category Archives: health
Somewhere In The Rainbow: My Husband, Bergen Amren
Bergen Amren April 21, 1943 – January 16, 2016 My love, my muse, my best friend R.I.P.
Posted in family, health, relationships, Young Onset Parkinson’s Disease
Tagged death, grief, heartache, stroke
7 Comments
Confession from an Artist with Parkinson’s Disease
It’s been – and still is – a long, hot summer. Miraculously, I’ve managed not to melt. More incredible, I worked up the courage to buy some real art supplies. Stuff I intentionally stopped using when diagnosed with Parkinson’s. Why? By avoiding … Continue reading
What’s It Like Having Parkinson’s? Try Bruce Ballard’s Simulation Exercises
Parkie Bruce Ballard — fellow WPC Blogger Partner — is shaking up the internet with his recent post: “What’s It Like Having Parkinson’s?.” If you’ve ever wondered what PD feels like, try these simulation exercises and encourage your friends to join the thousands … Continue reading
Sayonara Synthetic Dyes — I Was Still Raised on Kraft Dinner® and Gold Stars!
Raised on Kraft Dinner and Gold Stars © Robyn Michele Levy 1989 Raised on Kraft Dinner® and gold stars Chauffeured ‘round in fancy cars Pop-Tart® farts at the breakfast table T.V. Dinners with Rogers cable Froot Loops® drowned in two-percent Do … Continue reading
Lessons Learned From “Chasing Hope Through Humour & Art” in Medicine Hat
Parkinson Alberta‘s Beth Metcalf — who read my book twice and started planning this speaking engagement 3 years ago — is a multitalented, multitasking, make-it-happen maven (aka Client Services Coordinator). Parkinson Alberta has an awesome team of staff and volunteers dedicated to the Parkinson’s community. Medicine … Continue reading
Posted in Early Onset Parkinson’s Disease, health, humor, Parkinson's disease, travel, Young Onset Parkinson’s Disease
Tagged artist Parkinson's disease, Chasing Hope Through Humour & Art, community, Keynote Speaker, Most of Me: Surviving My Medical Meltdown, Parkinson Alberta, Robyn Michele Levy
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Robyn Michele Levy’s Brainwaves Join #FoxPDchat on Twitter — Friday April 17 at 12 pm ET
How is technology changing #Parkinsons research? Find out by joining @MichaelJFoxOrg for a scintillating #FoxPDchat on Twitter — Friday, April 17 at 12 pm ET.
Meet the World Parkinson Congress 2016 Ambassadors!
WPC 2016 Ambassadors play an important role: They all have Parkinson’s disease and have established themselves as dedicated and passionate leaders in PD communities close to home and around the world online; they’ve all attended at least one World Parkinson Congress; they … Continue reading
Robyn Michele Levy Joins World Parkinson Coalition’s Global Community of Bloggers!
I am so thrilled to be a blogging partner with World Parkinson Coalition — a nonprofit organization dedicated to a worldwide dialogue to help expedite the discovery of a cure and best treatment practices for this devastating disease. I will be one of … Continue reading
Posted in Early Onset Parkinson’s Disease, health, Parkinson's disease, research, travel, Young Onset Parkinson’s Disease
Tagged artist Parkinson's disease, cure for Parkinsons, fficial WPC Blogger, Most of Me: Surviving My Medical Meltdown, Oregon, Portland, World Parkinson Coalition, WPC 2016, writer
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Prescription Drugs in Blister Packs: Beware of Human Error — Even at the Best Pharmacy!
When I was first diagnosed with Parkinson’s, I asked Marg Meikle — aka The Answer Lady — for advice. She said, “Find yourself a good pharmacist.” So I did. How do I define a good pharmacist? Professional. Trustworthy. Knowledgeable. Accountable … Continue reading
Reflections on Fantastic #Parkinson Optimism Summit in Tuscon, Arizona
Physically I arrived home last week, but emotionally I haven’t landed yet. I’m still there — in the Tuscon desert — my heart open with gratitude for this tender, brave community finding me, inviting me. Thank you APDA Arizona!