Category Archives: health

Somewhere In The Rainbow: My Husband, Bergen Amren

Bergen Amren April 21, 1943 – January  16, 2016 My love, my muse, my best friend R.I.P. Advertisements

Posted in family, health, relationships, Young Onset Parkinson’s Disease | Tagged , , , | 7 Comments

Confession from an Artist with Parkinson’s Disease

It’s been – and still is – a long, hot summer. Miraculously, I’ve managed not to melt. More incredible, I worked up the courage to buy some real art supplies. Stuff I intentionally stopped using when diagnosed with Parkinson’s. Why? By avoiding … Continue reading

Posted in Art, Early Onset Parkinson’s Disease, health, Parkinson's disease, Young Onset Parkinson’s Disease | Tagged , , , , | 4 Comments

What’s It Like Having Parkinson’s? Try Bruce Ballard’s Simulation Exercises

Parkie Bruce Ballard — fellow WPC Blogger Partner — is shaking up the internet with his recent post: “What’s It Like Having Parkinson’s?.”  If you’ve ever wondered what PD feels like, try these simulation exercises and encourage your friends to join the thousands … Continue reading

Posted in Early Onset Parkinson’s Disease, health, Parkinson's disease, Young Onset Parkinson’s Disease | Tagged , , , | Leave a comment

Sayonara Synthetic Dyes — I Was Still Raised on Kraft Dinner® and Gold Stars!

Raised on Kraft Dinner and Gold Stars © Robyn Michele Levy 1989 Raised on Kraft Dinner® and gold stars Chauffeured ‘round in fancy cars Pop-Tart® farts at the breakfast table T.V. Dinners with Rogers cable Froot Loops® drowned in two-percent Do … Continue reading

Posted in Art, Early Onset Parkinson’s Disease, family, health, humor, Parkinson's disease, poetry, Young Onset Parkinson’s Disease | Tagged , , , , , , , | Leave a comment

Lessons Learned From “Chasing Hope Through Humour & Art” in Medicine Hat

Parkinson Alberta‘s Beth Metcalf — who read my book twice and started planning this speaking engagement 3 years ago — is a multitalented, multitasking, make-it-happen maven (aka Client Services Coordinator). Parkinson Alberta has an awesome team of staff and volunteers dedicated to the Parkinson’s community. Medicine … Continue reading

Posted in Early Onset Parkinson’s Disease, health, humor, Parkinson's disease, travel, Young Onset Parkinson’s Disease | Tagged , , , , , , | Leave a comment

Robyn Michele Levy’s Brainwaves Join #FoxPDchat on Twitter — Friday April 17 at 12 pm ET

How is technology changing #Parkinsons research? Find out by joining @MichaelJFoxOrg for a scintillating #FoxPDchat on Twitter — Friday, April 17 at 12 pm ET.

Posted in Early Onset Parkinson’s Disease, health, Parkinson's disease, research, Young Onset Parkinson’s Disease | Tagged , , , , , | Leave a comment

Meet the World Parkinson Congress 2016 Ambassadors!

WPC 2016 Ambassadors play an important role: They all have Parkinson’s disease and have established themselves as dedicated and passionate leaders in PD communities close to home and around the world online; they’ve all attended at least one World Parkinson Congress; they … Continue reading

Posted in Early Onset Parkinson’s Disease, health, Parkinson's disease, research, travel, Young Onset Parkinson’s Disease | Tagged , , , , , , | Leave a comment

Robyn Michele Levy Joins World Parkinson Coalition’s Global Community of Bloggers!

I am so thrilled to be a blogging partner with World Parkinson Coalition —  a nonprofit organization dedicated to a worldwide dialogue to help expedite the discovery of a cure and best treatment practices for this devastating disease. I will be one of … Continue reading

Posted in Early Onset Parkinson’s Disease, health, Parkinson's disease, research, travel, Young Onset Parkinson’s Disease | Tagged , , , , , , , , | 2 Comments

Prescription Drugs in Blister Packs: Beware of Human Error — Even at the Best Pharmacy!

When I was first diagnosed with Parkinson’s, I asked Marg Meikle — aka The Answer Lady — for advice. She said, “Find yourself a good pharmacist.” So I did. How do I define a good pharmacist? Professional. Trustworthy. Knowledgeable. Accountable … Continue reading

Posted in Early Onset Parkinson’s Disease, health, Parkinson's disease, Young Onset Parkinson’s Disease | Tagged , , , , , , | Leave a comment

Reflections on Fantastic #Parkinson Optimism Summit in Tuscon, Arizona

Physically I arrived home last week, but emotionally I haven’t landed yet. I’m still there — in the Tuscon desert — my heart open with gratitude for this tender, brave community finding me, inviting me. Thank you APDA Arizona!

Posted in Early Onset Parkinson’s Disease, health, Parkinson's disease, travel, Young Onset Parkinson’s Disease | Tagged , , , | 2 Comments