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Category Archives: Young Onset Parkinson’s Disease
Sunshine Strikes a Chord — A #Widow of Opportunity
Woke up alone in bed. Again. Shuffled to the kitchen. Greeted “good morning” by my radiant piano. Tuned in to Bergen. He loved music and how it connects communities. The way Keys to the Streets does — a project that aims to transform … Continue reading
Hindsight, Findsight — A #Widow of Opportunity
Found my late husband’s driver’s licence from 1965. Bergen was 22. A young man destined to travel the world. Had we met back then — when I was just one year old — I could have been his carry-on luggage.
Somewhere In The Rainbow: My Husband, Bergen Amren
Bergen Amren April 21, 1943 – January 16, 2016 My love, my muse, my best friend R.I.P.
Posted in family, health, relationships, Young Onset Parkinson’s Disease Tagged death, grief, heartache, stroke 7 Comments
Confession from an Artist with Parkinson’s Disease
It’s been – and still is – a long, hot summer. Miraculously, I’ve managed not to melt. More incredible, I worked up the courage to buy some real art supplies. Stuff I intentionally stopped using when diagnosed with Parkinson’s. Why? By avoiding … Continue reading
Guess How I Broke My Toe?
1. A stranger accidentally stepped on it while I was at Rain or Shine — my favourite ice cream store. 2. I got carried away while reading Toes In My Nose, a poem by Sheree Fitch. 3. My toe snagged on … Continue reading
What’s It Like Having Parkinson’s? Try Bruce Ballard’s Simulation Exercises
Parkie Bruce Ballard — fellow WPC Blogger Partner — is shaking up the internet with his recent post: “What’s It Like Having Parkinson’s?.” If you’ve ever wondered what PD feels like, try these simulation exercises and encourage your friends to join the thousands … Continue reading
World Parkinson Congress 2016 Launches “Portland Countdown” #WPCPodcast Today — Tuesday June 2, 2015
I’m a firm believer that knowledge is power. That’s why I’m so excited to tell you about Portland Countdown. This new series of free educational podcasts — hosted by two highly experienced journalists (who are also living with Parkinson’s) — … Continue reading
Parky the Raccoon Helps Travelers Attend World Parkinson Congress 2016
Parky made its debut in Montreal at the World Parkinson Congress 2013. Selling these stuffed toy raccoons was a “last minute” fundraising idea, leaving no time to create and advertise a Parky fundraising campaign. Much to everyone’s surprise and delight, Parky … Continue reading
Today’s Big Pharma Forecast For Robyn Michele Levy’s Brain
Today is a brave new day in your neurodegenerative life! Your brain chemistry — probably your dopamine levels — are out of whack and causing havoc: On/Off symptoms; body trembling; sleep deprivation. Begin neurologist’s new (and improved?) medication regime. Keep track of side-effects. Resist urge … Continue reading
Sayonara Synthetic Dyes — I Was Still Raised on Kraft Dinner® and Gold Stars!
Raised on Kraft Dinner and Gold Stars © Robyn Michele Levy 1989 Raised on Kraft Dinner® and gold stars Chauffeured ‘round in fancy cars Pop-Tart® farts at the breakfast table T.V. Dinners with Rogers cable Froot Loops® drowned in two-percent Do … Continue reading